Challenging Assumptions Around Dementia : : User-Led Research and Untold Stories.
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Place / Publishing House: | Cham : : Springer International Publishing AG,, 2023. ©2023. |
Year of Publication: | 2023 |
Edition: | 1st ed. |
Language: | English |
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Physical Description: | 1 online resource (154 pages) |
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Ashworth, Rosalie. Challenging Assumptions Around Dementia : User-Led Research and Untold Stories. 1st ed. Cham : Springer International Publishing AG, 2023. ©2023. 1 online resource (154 pages) text txt rdacontent computer c rdamedia online resource cr rdacarrier Intro -- About the Book -- Contents -- List of Figures -- Chapter 1: Introduction -- Meet the Co-authors -- Let's Write a Book -- Writing Sessions -- Missing Voices -- Emotional Content -- Dementia Statistics Overview -- Chris's Story -- Useful Resources: -- LGBTQ+ Community -- Useful Resources: -- Alzheimer's Society -- Alyson, Sheila, and David's Story -- Useful Resource: -- References -- Chapter 2: 'You Don't Look Like You Have Dementia' -- What Does Dementia at the Different Stages Look Like? -- Fighting for Financial Aid -- Raising Awareness Through a 'dementia card' -- Does It Help if People Know? -- Educating People About Dementia -- MAQ's Story -- MAQ -- Useful Resources: -- Winnie and Wullie's Story -- Winnie -- Useful Resources: -- Willy's Story -- Willy -- Useful Resources: -- References -- Chapter 3: 'How Does Your Dementia Affect You?' -- Understanding the Brain -- Myths About the Brain -- Areas of the Brain -- Myths About Dementia -- Myth 1: 'Dementia Only Affects Older Adults' -- Myth 2: 'There Is Nothing You Can Do to Change Your Risk of Dementia' -- Myth 3: 'Alzheimer's Disease and Dementia Are the Same Thing' -- Alzheimer's Disease -- Lived Experience -- Vascular Dementia -- Lived Experience -- Posterior Cortical Atrophy -- Lived Experience -- Frontotemporal Dementia -- Lived Experience -- Semantic Dementia -- Lived Experience -- Lewy Body Dementia -- Lived Experience -- Diagnosis Experience -- Martin's Story -- Myra and Archie's Story -- Agnes' Story -- Useful Resources: -- References -- Chapter 4: 'I Didn't Know I Was a Carer' -- Working with Paid Carers -- Being Recognised as Experts by Experience -- Sharing Home Space -- Examples of Best Practice in Care -- Planning Ahead -- Jenny and Her Mum's Story -- Useful Resources: -- Fred's Story -- Useful Resources: -- David and Anne's Story -- References. Chapter 5: What Research Means to Us: NRS Neuroprogressive and Dementia Network -- Getting to Know the Neuroprogressive and Dementia Network -- What Got You into Researching Dementia and Neuroprogressive Conditions? -- Could You Share Your Experiences of Dementia Research Over the Past 10-15 Years? -- Why Is Research Important? -- What Do You Wish People Knew about Research? -- Approaches to Clinical Trials in Dementia -- Lessons from COVID-19 Clinical Trials -- Hear from Research Participants from the Neuroprogressive and Dementia Network -- Spectrum of Research -- Understandings of Research -- Building a Partnership -- Examples of Best Practice in Co-produced Research -- Meet The Smarties -- Dementia Alumni -- Dementia Enquirers -- What We Would Like to See from Research Going Forward -- Stuart & -- Eileen's Story -- Sue's Story -- Rosie's Story -- References -- Chapter 6: Final Thoughts -- Question 1 -- Question 2 -- Question 3 -- For People Living with Dementia -- Family Members -- Professionals -- Members of the Public -- Get in Touch -- Embedded Links -- Index. Description based on publisher supplied metadata and other sources. Electronic reproduction. Ann Arbor, Michigan : ProQuest Ebook Central, 2024. Available via World Wide Web. Access may be limited to ProQuest Ebook Central affiliated libraries. Electronic books. Fyvel, Sue. Hill, Alyson. Maddocks, Chris. Qureshi, Masood. Ross, David. Hay, Stuart. Robertson, Martin. Gilder, Willy. Henry, Winnie. Print version: Ashworth, Rosalie Challenging Assumptions Around Dementia Cham : Springer International Publishing AG,c2023 9783031272226 ProQuest (Firm) https://ebookcentral.proquest.com/lib/oeawat/detail.action?docID=30733648 Click to View |
language |
English |
format |
eBook |
author |
Ashworth, Rosalie. |
spellingShingle |
Ashworth, Rosalie. Challenging Assumptions Around Dementia : User-Led Research and Untold Stories. Intro -- About the Book -- Contents -- List of Figures -- Chapter 1: Introduction -- Meet the Co-authors -- Let's Write a Book -- Writing Sessions -- Missing Voices -- Emotional Content -- Dementia Statistics Overview -- Chris's Story -- Useful Resources: -- LGBTQ+ Community -- Useful Resources: -- Alzheimer's Society -- Alyson, Sheila, and David's Story -- Useful Resource: -- References -- Chapter 2: 'You Don't Look Like You Have Dementia' -- What Does Dementia at the Different Stages Look Like? -- Fighting for Financial Aid -- Raising Awareness Through a 'dementia card' -- Does It Help if People Know? -- Educating People About Dementia -- MAQ's Story -- MAQ -- Useful Resources: -- Winnie and Wullie's Story -- Winnie -- Useful Resources: -- Willy's Story -- Willy -- Useful Resources: -- References -- Chapter 3: 'How Does Your Dementia Affect You?' -- Understanding the Brain -- Myths About the Brain -- Areas of the Brain -- Myths About Dementia -- Myth 1: 'Dementia Only Affects Older Adults' -- Myth 2: 'There Is Nothing You Can Do to Change Your Risk of Dementia' -- Myth 3: 'Alzheimer's Disease and Dementia Are the Same Thing' -- Alzheimer's Disease -- Lived Experience -- Vascular Dementia -- Lived Experience -- Posterior Cortical Atrophy -- Lived Experience -- Frontotemporal Dementia -- Lived Experience -- Semantic Dementia -- Lived Experience -- Lewy Body Dementia -- Lived Experience -- Diagnosis Experience -- Martin's Story -- Myra and Archie's Story -- Agnes' Story -- Useful Resources: -- References -- Chapter 4: 'I Didn't Know I Was a Carer' -- Working with Paid Carers -- Being Recognised as Experts by Experience -- Sharing Home Space -- Examples of Best Practice in Care -- Planning Ahead -- Jenny and Her Mum's Story -- Useful Resources: -- Fred's Story -- Useful Resources: -- David and Anne's Story -- References. Chapter 5: What Research Means to Us: NRS Neuroprogressive and Dementia Network -- Getting to Know the Neuroprogressive and Dementia Network -- What Got You into Researching Dementia and Neuroprogressive Conditions? -- Could You Share Your Experiences of Dementia Research Over the Past 10-15 Years? -- Why Is Research Important? -- What Do You Wish People Knew about Research? -- Approaches to Clinical Trials in Dementia -- Lessons from COVID-19 Clinical Trials -- Hear from Research Participants from the Neuroprogressive and Dementia Network -- Spectrum of Research -- Understandings of Research -- Building a Partnership -- Examples of Best Practice in Co-produced Research -- Meet The Smarties -- Dementia Alumni -- Dementia Enquirers -- What We Would Like to See from Research Going Forward -- Stuart & -- Eileen's Story -- Sue's Story -- Rosie's Story -- References -- Chapter 6: Final Thoughts -- Question 1 -- Question 2 -- Question 3 -- For People Living with Dementia -- Family Members -- Professionals -- Members of the Public -- Get in Touch -- Embedded Links -- Index. |
author_facet |
Ashworth, Rosalie. Fyvel, Sue. Hill, Alyson. Maddocks, Chris. Qureshi, Masood. Ross, David. Hay, Stuart. Robertson, Martin. Gilder, Willy. Henry, Winnie. |
author_variant |
r a ra |
author2 |
Fyvel, Sue. Hill, Alyson. Maddocks, Chris. Qureshi, Masood. Ross, David. Hay, Stuart. Robertson, Martin. Gilder, Willy. Henry, Winnie. |
author2_variant |
s f sf a h ah c m cm m q mq d r dr s h sh m r mr w g wg w h wh |
author2_role |
TeilnehmendeR TeilnehmendeR TeilnehmendeR TeilnehmendeR TeilnehmendeR TeilnehmendeR TeilnehmendeR TeilnehmendeR TeilnehmendeR |
author_sort |
Ashworth, Rosalie. |
title |
Challenging Assumptions Around Dementia : User-Led Research and Untold Stories. |
title_sub |
User-Led Research and Untold Stories. |
title_full |
Challenging Assumptions Around Dementia : User-Led Research and Untold Stories. |
title_fullStr |
Challenging Assumptions Around Dementia : User-Led Research and Untold Stories. |
title_full_unstemmed |
Challenging Assumptions Around Dementia : User-Led Research and Untold Stories. |
title_auth |
Challenging Assumptions Around Dementia : User-Led Research and Untold Stories. |
title_new |
Challenging Assumptions Around Dementia : |
title_sort |
challenging assumptions around dementia : user-led research and untold stories. |
publisher |
Springer International Publishing AG, |
publishDate |
2023 |
physical |
1 online resource (154 pages) |
edition |
1st ed. |
contents |
Intro -- About the Book -- Contents -- List of Figures -- Chapter 1: Introduction -- Meet the Co-authors -- Let's Write a Book -- Writing Sessions -- Missing Voices -- Emotional Content -- Dementia Statistics Overview -- Chris's Story -- Useful Resources: -- LGBTQ+ Community -- Useful Resources: -- Alzheimer's Society -- Alyson, Sheila, and David's Story -- Useful Resource: -- References -- Chapter 2: 'You Don't Look Like You Have Dementia' -- What Does Dementia at the Different Stages Look Like? -- Fighting for Financial Aid -- Raising Awareness Through a 'dementia card' -- Does It Help if People Know? -- Educating People About Dementia -- MAQ's Story -- MAQ -- Useful Resources: -- Winnie and Wullie's Story -- Winnie -- Useful Resources: -- Willy's Story -- Willy -- Useful Resources: -- References -- Chapter 3: 'How Does Your Dementia Affect You?' -- Understanding the Brain -- Myths About the Brain -- Areas of the Brain -- Myths About Dementia -- Myth 1: 'Dementia Only Affects Older Adults' -- Myth 2: 'There Is Nothing You Can Do to Change Your Risk of Dementia' -- Myth 3: 'Alzheimer's Disease and Dementia Are the Same Thing' -- Alzheimer's Disease -- Lived Experience -- Vascular Dementia -- Lived Experience -- Posterior Cortical Atrophy -- Lived Experience -- Frontotemporal Dementia -- Lived Experience -- Semantic Dementia -- Lived Experience -- Lewy Body Dementia -- Lived Experience -- Diagnosis Experience -- Martin's Story -- Myra and Archie's Story -- Agnes' Story -- Useful Resources: -- References -- Chapter 4: 'I Didn't Know I Was a Carer' -- Working with Paid Carers -- Being Recognised as Experts by Experience -- Sharing Home Space -- Examples of Best Practice in Care -- Planning Ahead -- Jenny and Her Mum's Story -- Useful Resources: -- Fred's Story -- Useful Resources: -- David and Anne's Story -- References. Chapter 5: What Research Means to Us: NRS Neuroprogressive and Dementia Network -- Getting to Know the Neuroprogressive and Dementia Network -- What Got You into Researching Dementia and Neuroprogressive Conditions? -- Could You Share Your Experiences of Dementia Research Over the Past 10-15 Years? -- Why Is Research Important? -- What Do You Wish People Knew about Research? -- Approaches to Clinical Trials in Dementia -- Lessons from COVID-19 Clinical Trials -- Hear from Research Participants from the Neuroprogressive and Dementia Network -- Spectrum of Research -- Understandings of Research -- Building a Partnership -- Examples of Best Practice in Co-produced Research -- Meet The Smarties -- Dementia Alumni -- Dementia Enquirers -- What We Would Like to See from Research Going Forward -- Stuart & -- Eileen's Story -- Sue's Story -- Rosie's Story -- References -- Chapter 6: Final Thoughts -- Question 1 -- Question 2 -- Question 3 -- For People Living with Dementia -- Family Members -- Professionals -- Members of the Public -- Get in Touch -- Embedded Links -- Index. |
isbn |
9783031272233 9783031272226 |
callnumber-first |
R - Medicine |
callnumber-subject |
RC - Internal Medicine |
callnumber-label |
RC952-954 |
callnumber-sort |
RC 3952 3954.6 |
genre |
Electronic books. |
genre_facet |
Electronic books. |
url |
https://ebookcentral.proquest.com/lib/oeawat/detail.action?docID=30733648 |
illustrated |
Not Illustrated |
dewey-hundreds |
600 - Technology |
dewey-tens |
610 - Medicine & health |
dewey-ones |
616 - Diseases |
dewey-full |
616.83 |
dewey-sort |
3616.83 |
dewey-raw |
616.83 |
dewey-search |
616.83 |
oclc_num |
1396698421 |
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